I was diagnosed this year at 23yrs old, no family history. I was told I’ve had it for a “very long time” but not sure exactly how long. I live with family (loving and attentive) and they are unaware. I think a pretty unique set of circumstances led to me slipping under the radar. But I’m curious what other people’s experiences were? Do you know why/how you slipped under the radar for so long?
My first known symptoms were:
- Delusions beginning around 3-5 years old.
- Possible mild disorganized speech throughout childhood. I do have confirmed mild disorganized speech now (can become acutely moderate as well on bad days, and if my ‘stutter’ is thought blocking—were unsure—then it’s overall moderate every day and can be severe at times)
- Negative symptoms, mild catatonia (only on bad days) and infrequent hallucinations began around ages 13-14 coinciding with a period of extreme life stress.
I was 3-5 years old when I experienced my first delusion. Was dead-convinced I had gone to the mall with my uncle and there was an impromptu Dora parade. Took 6 years for my parents to convince me it probably didn’t happen… my uncle also has no memory of it and says he’s never even taken me to the mall, and I’ve searched before but there were no news articles on it. Which—an impromptu Dora parade at the mall surely would’ve made the news. But then again, it would’ve been the early 2000s, so maybe not?
My parents always told me it was just a dream I had. I’d argue with them about it for years because it was a very strong memory and one of my favourite childhood memories, one of my favourite experiences and the strongest memory I had of spending time with my uncle as a kid. I also never confused any other dreams for reality (at least not for more than an hour or two after waking up). They don’t even remember the ordeal now. No one’s ever convinced me it didn’t happen, I just don’t think about it anymore and don’t really care whether it was real or not. I accept that it’s possible it was just a dream. But that’s as close as I think I’ll ever get. It felt as real as all my other memories when I was younger. Now it’s faded into a very distant memory from childhood just like all my other memories from childhood. I’ve experienced several delusions ever since I could remember, mostly paranoid/persecutory delusions with a few other types sprinkled in (religious, guilt, and some I’m not sure how to categorize).
My negative symptoms didn’t begin until I was around 13-14 (as far as I know) when I went through an extremely stressful period in life (anorexia + OCD went full-blown crazy + panic disorder). I thought I developed depression at the same time. The depression got better after a couple years, but still had remaining ‘depression without sadness’ ever since. Apparently it wasn’t depression, it was just negative symptoms. Then experienced 2-3 years of the highest level of MDD that can be evaluated, and now I can sorta recognize the difference between depressive episodes and my usual negative symptoms (still struggle discerning the beginning/end of depressive episodes where they’re more mild or moderate vs negative symptoms).
Hallucinations also began when I was 13-14 but they were infrequent and I never thought much of them. Not the stereotypical voices talking to me or seeing people that no one else did, so I thought it was just the normal ‘everyone experiences weird things sometimes’ and never mentioned it to anyone.
Do you remember your first symptom when you were a child?
schizophrenia