for those with light sensitivity

I am a 40 year old male.  I am suffering from a worsening health condition involving my vision.  Over the last couple of years I have become increasingly sensitive to light and glare resulting in the inability to drive at night or during the day.  I have been to several doctors, ophthalmologists, and neurologists.  None of whom can determine the cause of my severe photophobia.  I do not have any cataracts, glaucoma, or any other eye related diseases/conditions that would contribute to my sensitivity to light. My brain scans are also unremarkable. Bloodwork is normal as well. My actual vision is not poor in terms of blurriness but the sensitivity to glare and nighttime driving is unmanageable.  It is not only the intensity of light but the size of the glare that completely obstructs my vision.

I currently live with my parents who are in their mid 70's. I am full capable of working indoors primarily and outdoors on cloudy days. As previously mentioned I am unable to drive. My highest level of education is an MFA. I know this is a small community but I just wanted to share my condition in the hopes that someone could help me figure out what to do next. I am no longer interested in trying to cure whatever is happening to my eyesight. I simply want to figure out how to survive at this point.

Thank you.

Can anyone help me find a 27.5 inch (diagonally across) blue light screen protector? (24x13.5 inchess) I cannot find one.

Would it be better to just get a blue light screen protector that is too big then cut to size?

Please let me know if what I'm trying to convey is not make sense very well. I am trying my best and the blue light gives me brain fog and photophobia :(

"a usually temporary state of diminished mental capacity marked by inability to concentrate or to think or reason clearly" Also, memory problems for me. The symptoms are different for everyone...

I have this weird symptom where for several minutes (about 30) for 1 or 2 times a week everything looks brighter. It’s like colors are more vivid. My phone especially bothers me during these times because of the bright light. I was thinking it was photophobia but I don’t know. It’s not constant. Has anyone else experienced this? It’s frustrating because this happens so randomly but mostly during the afternoon hours. Ugh.

So, i've noticed that in the past few months, every light that is blue, not the color blue like a tinted lamp, the wavelenght of blue, such as neon signs and TV's and monitors, these light sources kinda "shift" or "blur" my vision. This usually happens during the day, or a well lit area. I have no problem using my computer or phone with the screen dimmed. It's hard to explain, but it seems that the blue light somehow overcomes my vision, everything gets a blueish tint, making it very hard to see. An aunt of mine said it's photophobia, she has similar symptoms with red. I haven't found anything on google that has to do with my symptoms.

So, is it photophobia?

Thanks!

Overusing computers caused my severe and quite debilitating photophobia, I have to choose, homeless or going back to work, does a Eink monitor make a difference?? Has anyone here tried one of those ? (are expensive AF so I can't afford to waste more money)

Is there something else to try that could work? Fasting for 10 days? Covering my eyes for a month? Anticonvulsants gave me insane side effects and did nothing for my pain, it's been more than 2 years and has barely improved but still I can't properly function.

Hey everyone! I wondered if you could help me with your experiences with this type of glasses.

I suffer from both migraines and photophobia. The migraines come and go but the photophobia is always there. It's not equally bad everyday. Some days my light tolerance is better than others, with or without a migraine or a headache. It doesn't always seem to be connected.

But it's always bad enough, that I only ever use normal glasses, when I'm driving after darkness. Other than that, i will always wear sunglasses. Indoors, when watching TV, in the cinema, in stores and outside even if it's dark or it rains. (Yes I know, I shouldn't do that. But thats not the point).

I have read about these pink glasses FL41. They don't seem to be a thing I my country, since I asked for them and nobody knew what I was talking about. So there isn't a chance, I can try them out in person.

My question is, does it really help with light sensitivity?? I get, that they filter out some light waves to prevent migraines. But they look so light. Not nearly as dark enough for me to be able to wear them at home, let alone outside in the sun.

Any experiences especially with FL41 and light sensitivity?

Does that tell me anything about my condition? Maybe binocular vision issues play role here?

It really hurts my eyes when light bounces off of glass - which happens a lot when driving when environmental conditions are right.

Does anyone have any experience of mirrored sunglasses helping any more than regular sunglasses? I bought polarized sunglasses before but I haven't found anything yet that mutes sunlight reflecting off of glass.

About 13 months ago, I went to an optometrist about my sensitivity, but she brushed me off and gave me prescription lenses, they have a blue light filter but no other tinting. My eyes don't focus well, and I also have astigmatism, if it helps. She didn't listen to my complaints at all. I have an appointment in a few weeks, probably with her, and I'm wondering what to mention to her.

My photophobia has gotten to the point where I can't hang out white laundry if it's sunny, sometimes struggle to do my schoolwork, and I've been putting off learning to drive because of the glare. I don't want it to consume my life any more.

Any medication,glasses or general advice pls

I've created a character for a story I have in the works of writing, she essentially has a superpower of being able to conjure/manipulate light. But I wanted to balance this with her having photophobia and also giving some rep to people with lesser known disorders. So how would she live her life on a daily basis? How do you would use light powers if you were given them?

Hello everyone,

I am an industrial product design student. I am doing research on light sensitivity disorder (photophobia) for my project. If you are struggling with that condition I would like to kindly ask you if you could fill in the following survey. I would seriously appreciate your help and involvement. I would be a valuable and a valid feature of my project where I could gather information from real people who are affected. This survey is completely anonymous.

Here is the link:

Light sensitivity (photophobia) survey

I think I'm on the spectrum, I've had people ON the spectrum basically say I should get tested (MANY of my friends are on the spectrum and have said this).

Some things drive me crazy but the wrong light is the worst. I love light if it's right. Like dim, and the right 'temp', sunlight's bearable in dusk/dawn but I can stand it more cause it's natural light...

We have sconces on the wall w/ smart lights and an overhead light in the bedroom. I can't get out of bed or move until someone turns the damn overhead light off, it's paralyzing. The wall lights I keep at 1% brightness unless I'm trying to find something and need more.

I also have tiny astigmatism I found out 3 years ago, but only wear glasses when I remember to. It's maybe gotten a little worse esp. when reading tests on screens and esp on mobile.

I've surfed the web for 30 years, and never had a problem but I'm so spoiled by chrome apps that put pages in dark mode, if I see a site without a dark option I literally cringe.

I use NightEye most of the time, but there are a few lame sites where the test is unreadable unless you turn it off. I hate those sites, lol. I'm a dev though so if it's an important site I can make a Greasemonkey script for it, but I'd rather not.

Anyways, I'm gonna explore this sub, and see if I can find some good suggestions. I found out about photophobia by seeing the word 'photophobia' on an amazon listing for light sensitivity glasses and I'm like: I think I have that!

Any eye drops to suggest to help with photophobia?

There are alot of people asking on a daily basis for reccomendations for glasses and colored lens reccomendations. I strongly recommend axon optics. They have a pinkish rosy colored lens but they are created just for folks like us with light sensitivity. My glasses have literally gave me my life back. Check them out. And you can also learn alot about light sensitivity on thier website too. Good luck everyone!

I see alot of people asking for reccomendations for glasses. I've tried alot of them. I swear by Axon Optics. You can get them for indoors or outdoors. I wear mine all of the time and I'm so glad that I found them. They literally gave me my life back. Ya all should definitely look into them.

I have a pair of Oakley prism polarized and over all they are good but for when I'm driving and someone in front of me had the sun reflecting off the glass or bumper or I look in my side mirror and the sun reflects severe glare back at me. This is particularly bad for me during fall and winter months with the angle of the sun being lower. At a loss of what glasses will kill this dangerous glare. HELP!! Thank you all!

I have semi mild sensitivity for UV light and a bit more for artificial light. I'm trying to find sunglasses for that. I'd like modern aviator pilot sunnies (for men). And not high budget, anything under 75$ with less protection would be more ratherable than expensive with more protection.

So I have suffered from light sensitivity but it’s never been real bad to the point it’s disabling, my problem starts to get bad when I drive at certain times. If the sun sits low I can’t see anything. Sunglasses or not. It’s the same with snow blind. I’ve sat next to someone and we’ve spoke about what we can and can’t make out in the distance and I couldn’t get past the hood of the car. Also when I drive mid morning and it’s still dark all the other headlights start to throw off my depth perception. It’s hard finding the turns or even telling where a car is in the distance. It can get so bad sometimes I can’t see the lines in the road. Are theses symptoms all part of photophobia. Blue eyes, fair skinned(I heard that plays a part) Thanks!

Hi,

Five years ago I had salmonella and like the flick of the switch my eyes went from 100 to 0 and I have been extremely sensitive to light. My doctor just thinks it was a coincidence but I’ve been to three neurologist and many doctors and I have tried many different things. Nothing works. I have category 4 sunglasses that are still too bright and if I wear to pair I’m OK. Anybody have some advice

I'm trying to work out what is actually going on with my eyes, so that I can deal with it and move on, I'm hoping there's a simple explaination which is why I'd like to ask this subreddit if they have perhaps experienced the same things?

- I have sensitivity to light, bright lights, where the sun is shining is very uncomfertable, when driving if I accidentally look at a headlight i see the after-image of that headlight for about 30 seconds.

- Sometimes I will see a random spot of light, a small shape near the centre of vision, not very bright, stays for a few seconds then dissapears.

- Sometimes if i blink/open my eyes on a bright surface i see a camera flash type of small light in the centre, if i blink multiple times it will flash multiple times (goes away after 1 second until i look back at a bright light).

- Sometimes lying in bed at night i can see small light(s), one or two, that appear for a couple of seconds and dissapear just as easily, these are not very bright and happen pretty much every night.

- I have a lot of floater, I have had a lot of floater for a good few years now, had multiple appointments with opticians for eye tests and just get told I have perfectly healthy eyes. At the test I had this past weekend I was told about visual migraines (which I have been told about previously) but I don't appear to have ANY of the reported symptoms of people who suffer with them, no auras, no glittering lights etc.

- Occasional pain behind either eye socket, i potentially have a sinus/eustacian tube dysfunction at the minute which I'm taking a steroidal nasal spray for, possible the cause for the pain.

It's important to note that I do have anxiety, and recently gone through a bout of quite bad anxiety, thankfully out of the other side but these 'symptoms' that are somehow unexplainable tend to drag me back in when i'm otherwise doing fine.

Is there anything more serious I should be looking into, or just learn to live with it? Any warning signs I should 'keep an eye out' for? Thank you so much for any help you could provide.

Hello fellow Redditors, for two years now I’ve dealt with severe photophobia in conjunction with mild panic disorder as a result of neurological Lyme disease. I feel great but the cycle of anxiety and chronic sun specific sensitivity is driving me mad. If anyone has any insights on this, I’d be immensely grateful. Neuro-Opthalmologist and regular have advised it must be beyond the eye structure as on comprehensive testing all is OK. The sunlight is brutal. Can’t even look in the direction of sun during day or it’s whiteout.

I'm pretty much useless during the day during the huge cognitive decline. I'm considering taking the plunge to the night life but it's not an easy decision to make because of it's radicalness. Looking to hear more from other people who have considered or done similar things.