My most recent labs.(63f) I do have fibromyalgia, At 21 I had my colon removed due to ulcerative colitis, which they now believe is Crohn's due to continued bleeding in remnant and also stoma, I seem to have CFS, I was positive on a tilt table test. I have Venus reflux disease in my legs and nonrheumatic tricuspid (valve) insufficiency of the heart. I'm the past few years everything seems to have gotten worse. I have not had covid or the vaccine. Fatigue, chronic pain, severe brain fog, HR jumps to 148 upon standing, resting HR is around 75. Even driving it will stay around 99. I do have a follow up appointment with the electrophysiologist next month but I would like to know what questions to ask and also if I should possibly get a referral to an endocrinologist.
Thank you for your help.
Who is managing your care / ordered these tests? Was the cortisol test done in the morning?
I’d definitely ask for a referral to an endocrinologist since most PCPs don’t have experience with cortisol issues. I’m guessing hyper parathyroidism isn’t in their wheelhouse either.
I’d also ask for a referral to a urologist because of the white and red blood cells in your urine.
I’m not a doctor though. Maybe post on the Ask Doctors sub too. It’s pretty active and some posts get helpful advice.