Pain starting to come back like it was in the beginning

I’ve been on Eliquis for a DVT in my L calf for 3 weeks now and the pain was getting better but has started to come back in the last 3 days. I was increasing my activity level and able to walk for a couple minutes every hour. Have been drinking tons of water and opting for healthy foot choices, lots of plant foods.

I’m scared the clot is coming back but I also tried to do calf raises yesterday so I could just be achy from that. And I could be just paranoid. But it feels like it did when the clot started.

I’m calling my doctor first thing in the morning since her office is already closed for the evening. Just looking to see if anyone has experienced this before.

in ClotSurvivorsby ecpella

100%

11d

SadCartographer3927

11d

Not the same situation but maybe some similarities: My father had a left calf clot after eliquis failure and was started on lovenox. His knee started acting up shortly after being sent home. He did a televisit after his knee started to hurt, and the recommendation from the doctor was that if the pain is in the same location at or below the knee, and there weren’t other symptoms and he was taking the thinners as prescribed, then they aren’t generally as worried about that kind of pain as they are if the clot seems to be growing or migrating up the leg and past the knee. Differences in his situation are that he’s on lovenox, which is a different drug profile than eliquis, and he has arthritis so joint pain could also not be clot related.

That said, as someone who was just around for an eliquis failure, if you are having any symptoms like swelling, redness or streaking, pain, heat around the area, or anything with your breathing, go to the ER. No point worrying.

ecpella

11d

Thank you for this feedback. The pain is in my calf and it also feels like I have a shin splint from ankle to knee. A dull pain was radiating up the back my leg from my calf with sharp pain behind my knee (smaller clot there) into my hamstring and groin like I had when I first got diagnosed but not nearly as painful maybe 20% of the initial pain.

I’ve been thinking about it and I forgot something in my apartment when I left for work this morning so I ran through the rain today from the car into my apartment and back and my leg started hurting after that so maybe it was just a bit too taxing of activity?

The pain got worse through today as I continued with my hourly 2-5 minute walks and I’ve been resting since I got home and the pain has gotten better with rest so maybe I just did a little too much?

I’m rambling but I’m scared. Essentially the pain is lessening and I have no respiratory symptoms.

hayhayhay12345

Lovenox (Heparin)

I feel you should never underestimate symptoms after having a clot especially if you're having pain. Always let the doctor confirm whether is something is wrong or not and as you go you will learn your body. I always think back to see what I could've been doing that cause a triggered symptoms. You may want to request to speak to a dietitian regarding the portion size of your food would be recommended and also vitamins k you should eat. Beware of high fat, sugar, fat, cholesterol, sodium, high fat meat and read meat and high calorie refined foods.🙏🏼

ecpella

Thank you so much ❤️

I have been eating more healthily than I have in several years. I went back to a plant based diet. I haven’t had meat in a few weeks. I’m getting proteins from lentils, pea/brown rice protein powder, and various plant, nut, seed sources. I will still eat seafood here and there I’m actually trying to increase my intake. I’m eating healthy oils, nuts, and avocados. I have imported olive oil that I will eat a spoon of in the morning. I eat nutritional yeast multiple times a week for B-12 but looking into safe supplementation. I don’t eat processed foods anymore really and I limit my sodium and sweets. A handful of chocolate chips from the freezer is a big treat for me :3

hayhayhay12345

Lovenox (Heparin)

You may want to be careful with the nuts, seeds, avocado, olive oil they are high in fat and calories which can thicken the blood. They can be eaten only a couple of time per week. My doctor said about a hand full of nut and seeds of is needed. My doctor have been checking two inflammatory markers d-dimer and fibrinogen. God lead me to foods that bring them it down. The down said won't do down but I'm praying it does.🤭The d-dimer is down now I'm working on the fibrinogen inflammatory marker. Healthy anti-inflammatory foods and vegetables is the main ones because of the high nutrients. Research flavonoids and polyphenols these foods help the gut microbiome and inflammation and mushrooms. Always eat the rainbow.🙏🏼

ecpella

I’m not concerned about that happening with healthy fats and I watch my overall intake :)

hayhayhay12345

Lovenox (Heparin)

You may want to research cocao dark chocolate not cocoa. You only need 1 small square per day.

ecpella

I honestly hate dark chocolate I currently have a bag of mini semi sweet morsels in the freezer and I’m great with that :)

Vcent

Mutant, CVST (Warfarin)

11d

The pain got worse through today as I continued with my hourly 2-5 minute walks

Frankly, that does sound slightly excessive, even if it's understandable. I'm guessing you didn't walk this much before diagnosis?

Usually pain that's 1:1 a mimicry of your original pain, is cause for getting it checked out - could be that your current anticoagulant isn't up to the job.

ecpella

10d

What sounds excessive?

I was active before diagnosis in that I would go for long walks 1-3 times a week. Usually walks would be 1.5 hours but sometimes 3 hours to clear my head. But no I didn’t make a point of getting up every hour to walk a couple minutes like I’m doing now.

The pain is pretty much gone this morning. We also got a lot of rain the past couple days I wonder if it was pressure changes causing it? Just very weird. I’m still going to call my doctor

Vcent

Mutant, CVST (Warfarin)

10d

But no I didn’t make a point of getting up every hour to walk a couple minutes like I’m doing now.

This part sounds slightly excessive. We usually see it in people anxious about their clot, worrying that they caused it. Usually in the context of them having pain in their legs, since they went from no walking to a bunch of regimented walking whether they felt like it or not. Considering the evidence for it being necessary is ... pretty much just "Well, it probably doesn't hurt(except when done obsessively), and probably has other benefits, sort of", those people can usually benefit from dialing it down a little.

Good to hear that the pain is mostly gone though.

ecpella

10d

I work at a desk job so I really don’t think it’s excessive to get up and walk every hour I’m there. People should be moving that often even without an active clot in their body. It helps with circulation of your blood in addition to the medication thinning it. It’s awful for every part of your body to sit all day. At home I live and sleep normally and I’m a pretty active person naturally so I’m never sitting/laying longer than an hour when I’m awake. I’m not sure where you’ve gotten your research but the recommendation is to be as active as tolerated.

Additionally I built up to my every hour walks slowly over the last 3 weeks. Initially I couldn’t walk at all and then it was one or two walks a day for only a couple minutes. As things improved and I could tolerate it I’ve increased my activity level. Everything was going fine and then the pain started to come back.

The part that I think I did too much was running through the rain as I’m not in the point of healing to handle running but didn’t really think about it and I wasn’t sprinting it was just a light jog to get to the door faster.

ETA: had my appointment my doctor told me that I should increase my walking time and be even more active than I already am if able to tolerate so to reinforce my point no I was not being excessive.